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Beauty on the Backroads

Stories of grace for life's unexpected turns

medication

Cold medicine, crutches and capability

May 29, 2021

“Why are you in the sped class?”

We were walking outside with some of our students when I overhead a student from another class that was also outside say this to one of our students. I didn’t hear our student’s reply, but I couldn’t let it go, so I turned and said, “That’s not what it is.”  The student who asked the question seemed surprised that I had heard and responded. She asked a follow-up question: “Is it the Leap class?” and by that she meant the “gifted” class. I shook my head and walked on. 

I probably could have had a longer conversation with the student, but I didn’t. Maybe it wasn’t the time or place. Maybe I was reluctant to draw further attention to the student in our class. The teacher of the class and I continued our conversation as we walked and I realized that this is one of the reasons students hate having to come to our class.

We teach reading skills. It’s not a special education class, it’s an intervention class, a distinction I still don’t fully understand. What I do know is that the student’s comment is probably not the first one our students have heard when they say they have to come to our class instead of stay with their friends. And it’s indicative of a larger societal problem.

Needing help in some area of our lives is seen as weakness. As something wrong with us. I try to fight this stigma with our students by constantly reminding them that needing help is normal. Asking for and accepting help is healthy. There’s nothing wrong with that. I don’t know if they believe me, but I know I have to keep trying.

Because sometimes I don’t believe me, either.

—

Earlier this month I developed what I was pretty sure was some kind of head cold/sinus thing, but to be on the safe side, I scheduled a telehealth visit with a provider who sent me for a COVID test that turned out to be negative. My cold symptoms persisted and taking cold medicine helped me sleep and get through the day, so for two days, I relied on Mucinex to keep my cough under control so I could sleep and function.

And I hated that I had to do it.

Photo by Kate Hliznitsova on Unsplash

I can’t remember a time in my life when I was eager to take medicine. My body is extra-sensitive to it, so I usually have to take a little less than what’s recommended as a dose and I don’t like the not knowing: am I feeling better because I’m healing or because of the medicine? (It’s usually the medicine.)

But I’m learning. Medicine is a tool when used properly and responsibly. It can become more than that but sometimes we need a little help to get through the day. Sometimes we need more than a little help.

After a couple of days, I was able to get through a day without the medicine, which felt like a victory. Because in my mind, needing medicine is a sign of weakness. If I need medicine, I’m somehow deficient, unable to function “normally” (whatever that means). I’ve been conditioned to believe that a medicine-free life is the normal way to live.

Maybe I’m not that different from the student I corrected after all.

—

I listen religiously to the “Office Ladies” podcast with Jenna Fischer and Angela Kinsey. It’s the only thing better than re-watching all the episodes of “The Office.” (Actually the podcast might be better than that because you get commentary and behind-the-scenes info.)

On a recent episode, Jenna Fischer talked about her anxiety. (Side note: I love, love, love when actors and other performers and famous people talk about their anxiety and self-consciousness. They are regular human beings who have succeeded at a job, but that does not mean they are perfect and love every minute of the fame.)

Photo by Luis Quintero on Unsplash

She said it was like a backpack. Some days it’s light and some days it’s heavy, but it’s never not there. I appreciated this description because that’s how my own anxiety feels. It does not weigh me down every day, but some days it feels overwhelming. On those days, I usually take a small dose of Xanax to help me navigate the world. Sometimes I will tell my husband, “I have to take a Xanax today” or “I’m going to have to take a Xanax to get through this.” I say it like I’m apologizing or making an excuse. Sometimes I’m still ashamed that I have a medicinal tool that works in my life when I need it to.

But the truth is: the anxiety meds help me carry the backpack when it’s too heavy. And a weird thing about anxiety in my experience is that sometimes I start out the day with a light backpack and I don’t even realize that throughout the day, I’m putting more stuff in it so that by the end of the day, I’m carrying a much heavier load than I started with. And the next day, my body aches on the inside from hauling all that stuff around. Sometimes I take the anxiety meds the day AFTER a stressful or overwhelming day because my body has been trying to handle it all on its own.

My anxiety medication is a tool.

I keep telling myself. Maybe one day I’ll believe it.

—

“Crutches are a tool, not a toy.”

I said these actual words in the cafeteria this week while I was supervising a lunch period. A student is using crutches for a legitimate medical reason, and another student grabbed them while that student was sitting and started using them. That’s when I said what I said.

We have the same problem sometimes when our students use the chairs with wheels in the classroom to move themselves from one side of the room to the other. We ask them to please stand up and move themselves and their chairs across the room because these are chairs with wheels not wheelchairs. I don’t know if we’re doing this right, but we’re trying to teach them the difference between rolling themselves across the room because they don’t want to get up and needing to use a wheelchair because of a disability.

My sister-in-law is a vocal advocate for disability rights and correcting the language we use. I learn from her about ableism and ways I didn’t even think to see it in society and in my life. She has taught me to remove the words “lame” and “crutch” from my vocabulary when they are used to describe non-medical situations. 

Photo by Lance Grandahl on Unsplash

I thought about the word “crutch” a lot as I struggled with the head cold. In my head, I thought that cold medicine was a crutch for me to get through the day. It had a negative connotation in my mind. But if a crutch is a tool you need when your body needs help, then so is medicine. Crutches don’t mean we’re weak or less then. It means we need help in some way.

I have a lot to learn. And I’m sure I’m still getting it wrong. But I’m trying to tune my ears and focus my eyes on the way our culture values ability and devalues disability. 

Please, keep teaching me so I can keep teaching my students that there’s nothing “wrong” with them if they need help in some way. Whether it’s with reading or math or social skills or managing their emotions. Whether they need meds or assistive technology.

And so I can see the world more clearly and deconstruct my own ableist tendencies.

—

Talk to me about this topic. Are you aware of ableism in our society? How do you see it? And who or what teaches you more about it?

Filed Under: mental health, work Tagged With: ableism, ableist language, anxiety, asking for help, medication, teaching

A garden, untended

September 5, 2019

I stayed home from work today, and I was thinking about you and how I would come back to this space and attempt to tell you what’s been going on and why it’s been so quiet. I won’t pretend you’ve noticed my absence or thought about what’s been lacking from this space. I show up here mostly for me, because I can’t stay away from writing for too long. I hope that doesn’t sound selfish. If you haven’t missed me, well that’s okay, because I’ve missed you.

Summer was full of summer-y things some of them fun like vacation and day-trips and some of them necessary like medical appointments. With work and school schedules being what they are, summer is often the most convenient time for dental visits and doctor check-ups. Maybe you can relate.

In our house, summer revolves around family time because we are together so much–me and the kids, me and Phil, both of us and the kids–and by the end of summer, I am spent. Emotionally. Physically. Spiritually. I know there are people who thrive in summer. I am not one of them. I said more than once out loud to another person, “I am not my best self in summer.”

It was kind of a joke. But I didn’t know how true it was until this week.

—

I don’t really know where this story begins. Maybe it’s at the beginning of summer when I was feeling good about life but decided it was time to schedule a physical. Maybe it was January when I started to notice something different about my period. (If you need to leave now because you can sense where this is going, I take no offense. You can skip all the way to the end to get the bare bones version.) I’ll spare you some of the details.

I’d lost weight since my last physical and my blood pressure was reading a bit low, so after years of taking medication to lower my blood pressure, I was given the go-ahead to stop. I was feeling good about my health and the positive steps I’d taken to get there. Because of the other issue, my provider ordered an ultrasound, which I took care of ASAP. When the results came back, I wasn’t prepared. I had a large cyst on my left ovary.

It was months before I could see a specialist to find out more about what this meant, and when I finally did, she ordered another ultrasound to see if the cyst had changed in any way. It hadn’t, and it was three more weeks before I could follow up with her. During that time, summer ended, and I went back to work. The start of school is a stressful time of transition as we as a family re-adjust to a daily schedule and new routines, not to mention the stress of learning new students names and needs.

While I was waiting to see the specialist, I had blood drawn to check my cancer antigen levels, and I knew that surgery was part of the next step, but I didn’t know anything else. The cyst. The surgery. The uncertainty. It all loomed in the background but I tried not to let myself think of any of it too often.

I love the challenge of a new school year, and if it was only this and a health issue, then maybe I could have handled it. But money is always tight in the summer because I’m not working, and current and future medical bills did not ease my worries. Added to those stressors are others I’m not willing to talk about here yet.

So many things have been going well and right for our family in recent years and months. I thought these were small bumps and they would pass.

On Wednesday I walked into the specialist’s office to talk about surgery and my blood pressure was off the charts high. I mean, when the doctor walks in and says, “I’m having a stroke over your blood pressure” while you sit there sobbing into a wad of tissues, you know it’s not good. No amount of talking about my blood pressure was going to make it better.

I listened through tears as she talked me through all the possible scenarios about surgery, some of which calmed my fears, others that did not. We talked about how when you have an emergency C-section (the only surgery I’ve had in a hospital) you don’t have any time to think about it or worry and you get to meet your baby at the end. Not so when you’ve got an ovarian cyst that doesn’t appear to be cancerous. No one’s in a hurry to take it out, which is good in a way, but for my chronically overthinking brain, bad.

So, she sent me back to my primary doctor to get the blood pressure under control. It was still high later that same afternoon, but it had come down some. We agreed to put me back on the blood pressure medication and she gave me a prescription for an as-needed anxiety medication.

Photo by pina messina on Unsplash

I am an anxious person. I have known this about myself for a long time. I have never thought my anxiety was that bad. However, I couldn’t describe to you what “that bad” means. Thankfully, my doctor didn’t ask about the prescription. She told me, saying, “I’m giving this to you. Don’t use it every day. But let’s see if we can get you through this.”

—

I’m almost in tears as I write this a day later because part of the reason I’m where I’m at now is thinking I needed to “get through this” on my own. 

I have to keep the cogs of our family turning. 

I have to keep the peace between my kids. 

I have to solve the problems and manage the money. 

I. I. I.

Photo by Toa Heftiba on Unsplash

Please don’t read this and think that my husband does not share any of this responsibility. He does. He is the person I would choose again and again to partner with in this life, and I do not want anyone else by my side in his place. He and I are a team, and we play different roles as needed. This is not about him or the kids not pulling their weight. It’s about me.

My doctor said “we,” and that is the thing that is undoing me. I’ve been flying solo for so long and now that my body is maxed out, I see the error of my ways.

“We” is such a beautiful word.

—

I have texted 16 people in the last 24 hours, and some of those involved multiple texts in a conversation, and I’ve talked to three people on the phone (four if you count the call I made to schedule one of my pre-op conversations). If that doesn’t sound revolutionary, then you don’t know me very well.

I should have been doing this all along. I know I can’t change the past, but I’m wishing I had done things differently. My husband said to me today that he’s jealous of my support system, and I think that’s part of why I’m crying so much. I have so many strong and deep relationships from various stages of my life. The texts have hit every time zone in the continental U.S., which humbles me further. I know that I am rich in friendships, including family, and I do not express my gratitude to them enough. Or ask others to share my burdens enough.

I don’t know why it takes suffering and crisis and tragedy for me to ask for help or to tell people how much I love and appreciate them.

—

We had four days off from school and work last weekend, and one of those days, I went out to the garden. Calling what’s left of our vegetable plot a “garden” is generous. There are more weeds than plants, and it is like walking through a jungle. I have to wear long pants and take big steps, kicking down the weeds as I walk to make a path to the tomatoes.

Earlier in the summer, when I was feeling good about life, I worried about leaving the garden untended when we left for vacation. What would it look like when we returned?

It was not the mess I thought it would be. We had taken care beforehand to pull weeds and water and the weather did its part.

In the last month, the weather has been hot and sticky, sometimes fickle, and once school started again, I had less time for the garden. I often tell people I can take care of only a few things at a time: my kids, the garden/houseplants, my students. What I see is that I left myself out of this equation.

The garden has suffered from inattention and so have I.

Photo by Annie Spratt on Unsplash

Even before the blood pressure cuff revealed the truth, I knew I was not taking good care of myself. The most obvious sign of this to me is that I am not running regularly. Running might sound like work, but to me it is a release of all the energy and emotions I absorb from other people. This is part of who I am, and if I cannot release these feelings and emotions, then they fill me to the breaking point.

That is where I’m at now. I am not carving out time for myself and doing the things that give me life. I haven’t sat on my porch in weeks. I wake up thinking of all the things I have to do and then I get the kids to school and myself ready for work and sprint through a school day only to come home and get dinner started before the kids come home and it’s time for bed. Sometimes I crash on the couch and lose myself in a Netflix binge, but at best, that is only a numbing distraction. It is not giving me life.

And I’m not asking for help or telling people what I need. I have two specific ways to change this, and I will not let another day pass without giving voice to my needs. I learned this from years of therapy.

I need to re-learn it now.

—

Back when the garden was thriving, I realized that the word “tend” is part of “intention.” Intention is what I’ve been seeking this year and when I’m choosing with intention, I am tending.

I am taking care of me.

—

If you’re a “just the facts ma’am” kind of person, here they are: I have surgery scheduled for October 30 to remove my left ovary along with the cyst. In the meantime, my job is to lower my blood pressure. And not freak out about surgery. Any and all prayers and positive thoughts appreciated.

Filed Under: gardening, health & fitness Tagged With: anxiety, health concerns, medication, motherhood, self-care, stress

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Hi. I’m Lisa, and I’m glad you’re here. If we were meeting in real life, I’d offer you something to eat or drink while we sat on the porch letting the conversation wander as it does. That’s a little bit what this space is like. We talk about books and family and travel and food and running, whatever I might encounter in world. I’m looking for the beauty in the midst of it all, even the tough stuff. (You’ll find a lot of that here, too.) Thanks for stopping by. Stay as long as you like.

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